Well Chemo was a bit of a Bitch!


Talk about sidelined! That was nothing compared to what chemo did to me. I’ll leave the more gruesome details to specfic posts in my planned ‘Surving Chemo’ page but I would like to share my journey now that I can somewhat function. It still may take me a while but it was something I wanted to do from the start. Although I haven’t been able to write as I had hoped, I have been documenting pictorially and that jogs my memory to the powerful emotions and physical horrors I have been through. 

Friday is my last dose of ‘Chemo’ and now the end is in sight I am hoping I can recover somewhat. However, it is only the end of one (extremely long and painful) chapter and I now have to ready myself for surgery and radiation which will take me through to Christmas. I am also still receiving another Chemo type drug for about a year but I’m hoping the everyday side effects aren’t too extreme so that I can start to heal and repair all the damage done by the very first dose of chemo I had. 

Apologies to the people following for food intolerances as there will be a bit of a Cancer focus for a while. However, don’t despair as there will be a bit of content you may be interested in as I have made quite a bit of progress in this area. I can now eat a plate of veges and a chicken and vege soup with short cooked stock.  So still stick around as I will also touch on my usual topics. 

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Life Has Been a Little Sidelined

Is there anyone still out there? 


It’s been ages since my last post. Life as I knew it stopped for me in February. As if I didn’t have enough going on with my health and insane life, let’s just add Breast Cancer! 

I’ve been wanting to post for ages but finding motivation and energy is the hardest part. So my blog is going to have a bit of a Breast Cancer tangent for a while but bigger picture it will still have a wellness and allergy/intolerance focus because the biggest thing this diagnosis has shown me is the immediate need to completely overhaul my life. 

But first, let’s survive Chemo!

Mast Cells Don’t Go Crazy for No Reason! 5 Things You Must Address if You Have Acquired Mast Cell Activation Disorder

This is a great starter article for those delving down further into histamine and inflammation. I wish I could get my head around this stuff and come up with a treatment plan! If anyone knows a professional in Brisbane who can put all these pieces together for me that would be fantastic!

Made My Day!

I received something this morning that absolutely changed my day for the better!

I’ve been absolutely hounded by the Black Dog lately. Not up to doing very much at all but existing through my daily grind. I’ve had a lot of theories on causes and thought about writing a post about those but this morning I was given something better.

For those with chemical and salicylate sensitivity you will understand that I can’t use commercial soaps or body washes due to the chemical crap and perfumes they put in them. However I have a wonderful friend who started soap making and she was good enough to teach me how to make a low chemical soap.

I love this soap! It doesn’t lather the same way ‘normal’ soap does but it has enough of a lather that I can even shave with it (because of course I can’t handle shaving creams).

I find when you make things yourself from scratch you gain an appreciation for the entire process and the end product becomes more precious. My kids will attest to this from the lecture they get when they waste food I have made for them! So my soap is precious to me.

Last Christmas I gave all the ladies in my office a bar of my soap. I told them a bit about it, explaining that is was only slightly scented with essential oils because of my issues and that it is one of the few soaps my daughter has used without an eczema flare up.

One of the ladies had her Granddaughter try it. Her Granddaughter has severe eczema and cannot use commercial soap either. The initial bar soon ran out and as it had been so successful with her eczema I gave them a few more bars.
This morning my colleague told me how excited her Granddaughter was having her very own soap that she could actually use! She kept lathering herself up, proud that she could use a bar of soap. This was enough to lift my day and then my colleague presented me with this card.


That made my day! So Thank you Tahlia! ❤️

An Article on Oxalates 

Hello again! It’s been a little while since my last post and even longer since a blog entry but that’s what back to work and school will do to you! I have so many posts and recipes sitting in my head waiting to get out but in the half hour a day I get to myself between when the girls go to bed and I fall asleep on the couch I’ve been having to do our budget so that we may actually buy a house (freaking me out!!!).
Here is an article on oxalates to keep you going. I’ve been avoiding researching oxalates because I just don’t have the space in my brain to take anything more in. I’ve had a feeling this may be a missing link for me as the foods listed as high oxalate are generally the salicylates that have been puzzling me. It’s weird as I can tolerate some pretty high salicylates but lower ones such as sweet potato gives me grief where pumpkin does not. Three leaves of baby spinach gave me a massive reaction where I can eat a few kale chips with no problems.

There are not a lot of the major symptoms mentioned in this article that I experience regularly but I have read in other forums and articles oxalates relationship with food intolerances and histamine issues. I just can’t remember exactly what they are at the moment. So if anyone wants to chime in please feel free!

I am still working this through in my brain but that half hour a day goes pretty quickly when it’s got to compete with budgets, menu planning, trying to find school lunches my kids will actually eat, Facebook, house hunting, and forget the me time of doing my photography course or colouring for mindfulness! My mind is full!!!

Rant over. Anyway here is the article. I quite like this one as it differentiates between actual research and anecdotal theories. I like the advice at the end that this is just an issue for us oddballs who are experiencing problems. It’s not the latest diet craze for those annoyingly healthy people who don’t have to think this much about everything!

Oxalate Good or Bad

The Mystery of Pyroluria

There was a simple article about pyroluria in my news feed today that I will share as it is a really simplified overview. However I was concerned about the source and it seeming like quack science to those who have not been on the journey I have. So I looked for more ‘scholarly’ articles and have wasted nearly an hour trying to find something outside of my usual sphere of research with no luck in finding something easily digestible.

image

All I know is following a treatment protocol for myself and my girls has made an amazing difference to our quality of life. We have reduced the instances and severity of illness exponentially and I see first hand the difference in behaviours when the girls haven’t had their supplements for an extended period. The girls have been able to add foods back in that they previously had minor intolerances to and I am at a point where I can work on introducing foods and feeling like my body can cope with it.

So as with everything I post, use it to inform yourself, do some more research if it is something that rings true to you and follow your heart in what is best for you! I will look at adding to my research on this but for today I’ve got to get off my arse and get into the day!

The articles I did find are below:-

The Mindd Institute

An article recommended by my BioMed GP

This is my BioMed GP

 

I think I’ve hit the wall…

So today was the least productive day of my holidays and getting a bit over it. I managed to get in a shopping trip to Ikea to finish off the kitchen storage solutions, sorted Scar’s desk to make way for her new one and got rid of one of the kids bikes (yay for the de-clutter!).

It was also day two of three of Vi’s failsafe foray. I’m testing to see if my theory about salicylates and her nocturnal enuresis is correct in the shortest possible timeframe. I know 3 days isn’t long enough but I’m just hoping I’ll see something. I have no I idea what I’m going to do if the theory is correct as I really cannot make her live on such a restricted diet. I’ve been stuck on baseline for 7 years now and would not wish that on anyone. Massive Kudos to any Mum who can go the whole hog, I just don’t have the energy. I am more trying to find out the underlying cause of the intolerances and fix that rather than just treat the symptoms.

You’ll hear me talk a lot about failsafe and for those who have not yet had the pleasure of being introduced to this concept, check out Sue Dengate’s page that is a great resource.