Well Chemo was a bit of a Bitch!


Talk about sidelined! That was nothing compared to what chemo did to me. I’ll leave the more gruesome details to specfic posts in my planned ‘Surving Chemo’ page but I would like to share my journey now that I can somewhat function. It still may take me a while but it was something I wanted to do from the start. Although I haven’t been able to write as I had hoped, I have been documenting pictorially and that jogs my memory to the powerful emotions and physical horrors I have been through. 

Friday is my last dose of ‘Chemo’ and now the end is in sight I am hoping I can recover somewhat. However, it is only the end of one (extremely long and painful) chapter and I now have to ready myself for surgery and radiation which will take me through to Christmas. I am also still receiving another Chemo type drug for about a year but I’m hoping the everyday side effects aren’t too extreme so that I can start to heal and repair all the damage done by the very first dose of chemo I had. 

Apologies to the people following for food intolerances as there will be a bit of a Cancer focus for a while. However, don’t despair as there will be a bit of content you may be interested in as I have made quite a bit of progress in this area. I can now eat a plate of veges and a chicken and vege soup with short cooked stock.  So still stick around as I will also touch on my usual topics. 

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Life Has Been a Little Sidelined

Is there anyone still out there? 


It’s been ages since my last post. Life as I knew it stopped for me in February. As if I didn’t have enough going on with my health and insane life, let’s just add Breast Cancer! 

I’ve been wanting to post for ages but finding motivation and energy is the hardest part. So my blog is going to have a bit of a Breast Cancer tangent for a while but bigger picture it will still have a wellness and allergy/intolerance focus because the biggest thing this diagnosis has shown me is the immediate need to completely overhaul my life. 

But first, let’s survive Chemo!

I Love Orgran! – Egg Free Potato Salad Attempt


I’m heading off camping this weekend and it is a very back to basics deal where we can’t take a car so have to carry everything ourselves. For me that is a challenge for food as I can’t take too much in the way of cooking equipment and food.

I’ve got a butane burner and a little fry pan so dinner is going to be steak but I don’t want to mess around peeling and boiling potatoes so I’ve been trying to find a potato salad recipe that I can actually eat. I’m not quite up to raw eggs (and I would be dubious about how it would keep in an esky) so that rules out most mayonnaise recipes and of course premade in a jar isn’t an option. Then I thought ‘No Egg’! And sure enough Orgran and Google prevailed!

Of course I still have to moderate that recipe as it is high Sals but theoretically it can be done. Let the experiment begin!

Orgran Egg Free Mayonnaise
Now the tweaks for us failsafers:-

Replace the oil with Rice Bran Oil, lemon juice with citric acid (I’m going to try 1 tsp as I’m a bit sensitive) and omit the mustard powder.

Not sure if you need help turning that into potato salad but if you do. Boil up some potatoes so they are still a little firm. Add the mayo and some parsley and/or chives and voila! Potato Salad!


Edit – Post Mayo Review

Ok it was crap! It will do in a pinch but was pretty tasteless even for me. The consistency went like mousse and it was very powdery. The big omission in this recipe is salt – it really needs it so add to your taste. Also I ended up adding 2 tsp citric acid but it didn’t help. It was edible but could have been better.

School Cupcakes

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Any allergy Mum knows about the ‘School Cupcakes’. These are the cupcakes you have to keep in the school freezer for when other kids bring in birthday cakes to share.

Be it empathy or guilt over restricting their diet I hate when my kids have to miss out on some yummy treat that everyone else is eating so I do my best to substitute. That’s why there’s sprinkles on top. Not that they can compete with western diet over-abundance of all things sweet but it’s my little way to make it a bit special from the norm.

I got a bit lazy at 10pm last night when I finally got the chance (spied them on the cooling rack before bed and thought crap I need to ice them for the morning) to ice these cupcakes. In comes the good old Pure Harvest Chocolate Spread! It’s not nutella but as it is gluten/dairy/nut free my kids can have it on their sandwiches for school!

The cupcakes are the Orgran Chocolate Cake Mix and sprinkles are Hopper brand. Even I can tolerate the Hopper sprinkles! Unfortunately for the failsafe kids these cupcakes aren’t an option but you could use my Vanilla cake recipe and a simple icing sugar and water icing.

Flying Warrior

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have finally been able to try flying yoga and I love it!!

A new yoga studio has opened in Wynnum and it is offering a fantastic range of yoga classes including aerial yoga, vinyasa, hot yoga, pregnancy and kids. Check out their Facebook page for more info Warrior Life Yoga

Today was my third flying class and I’m getting comfortable enough to go straight into the inversions and push myself a bit further. It takes quite a bit of trust in yourself and the sling but once you’ve got the basics it’s easy. The instructor Kellie breaks down the moves to very easy steps and is always on hand to help if you get stuck.

Friday morning I tried out the Vinyasa and it was fantastic! I haven’t had been to a good class in ages so I was very happy when this one met all the criteria – good flow, enough of a push, knowledgeable teacher and 6am timeslot so that I can fit it in before work.

It has been so hard to find a class that I like and I can actually get to between work and looking after the kids! Check them out and support a new local business!

What to do today?

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Do you every get so overwhelmed by everything you have to do you just don’t feel like doing anything? I’m paralysed by indecision. There are so many things I have to/want/should do and also taking into account the wishes of all those around me and I quite often end up doing nothing.

It only took three days of back to normal routine when the kids returned to school for my body to starting complaining and the overwhelming fatigue to return. I can have all the best intentions in the world but when this happens it all goes out the window.

Over the holidays I was able to do little things each morning – taking the time to open all the windows and blinds, put some incense and essential oils on. You’d be surprised how much time this takes up. Now we’re back to the every minute of the day is accounted for lifestyle. I laugh (figuratively – really I get quite annoyed) when people say “Just take some time out for yourself”, or “it won’t take long, just do….”.

You also know the things you are supposed to do like get up at 5am so I can go for a walk/ride/yoga session but I’m usually so tired and drained from the day before that playing on my phone before I get up feels like the only me time in the world. I try it the other way, before I go to sleep at night,  but I’m only on it 5 minutes and the phone falls to the floor with a crash startling me awake.

The well wishing people would say go to bed earlier. I’m already going to bed straight after I finally wrangle the kids into theirs! On a good night I might get an hour to myself to vegetate in front of the TV but that is usually in tandem with paying bills, signing school/activity forms, researching or catching up on the million emails and scheduling into my calendar camps, volunteering days, and any other extra curricular activities coming up. If it’s not in my calendar, it doesn’t happen.

I know I’m not the only one. Hats off to all the mothers out there just surviving through each day while the years fly by. This is all the wonderful journey of Motherhood (apparently) but I would just like to have some time to actually spend with my kids and not be so exhausted that I just can’t wait for them to finally go to sleep!

Then there’s the ‘advice’, just let all the other stuff go and enjoy your kids while they are young. Ha! If I let stuff go (like I have this afternoon to write this article) it snowballs until it is actually worse. I would have been better off not having ‘time to myself’ because I’m the one who pays later.

I would love to visit friends and relatives and just hang out more, spend quality time with my kids, get out and live life.  However this will take up one of the two days a week I have to squeeze my life into and means that I will have to go without my preparation for the week that helps me stay on top of things.

So I just keep plodding away, trying to implement whatever new strategy the ‘experts’ recommend knowing I’m doing the best I possibly can with the resources I have.

To all the other Mothers – keep on surviving! To all the well-wishers and advice givers – instead of giving unsolicited advice ask ‘What can I do that will help you?’ and don’t judge based on what they ask you to do. It will be important for them even if it doesn’t seem that way to you.

Well after that rant I’m off to bake a chook to feed me for the next few days, make my kids dinner, bake my treats for the week, bake cupcakes for the kids to take to school for when other kids bring in birthday cakes, play Rummikub with my girl and fuck only knows how many other things!

And can someone visit me for a change so I don’t have to go through the whole rigmarole that leaving the house entails?!

 

Mast Cells Don’t Go Crazy for No Reason! 5 Things You Must Address if You Have Acquired Mast Cell Activation Disorder

This is a great starter article for those delving down further into histamine and inflammation. I wish I could get my head around this stuff and come up with a treatment plan! If anyone knows a professional in Brisbane who can put all these pieces together for me that would be fantastic!